As we said in the last blog a positive attitude and self-management skills can make it much easier to live with chronic pain. And as we said in the last blog, beliefs, circumstances, your mood, and the attention paid to the pain symptoms will determine in good part how difficult it is to manage.
Here is the situation people often face when dealing with chronic pain. The pain causes you to stay home alone, a lot. Your friends say, “Get out. Do something. Stop thinking about your pain all of the time.” They just don’t get it. If you hear it just one more time the outcome won’t be pretty. It’s easier to stay away from people than to risk arguing with them about the way you’re managing the pain or not managing it. Continue reading “Chronic Pain”
Part Two of Two: How to be an equal partner with your healthcare provider.
In our last post, we talked about the problems with our present healthcare system. We discussed how it has become a for-profit enterprise with healthcare corporations hospitals and insurance companies paying large amounts of money to their CEOs and dividends to their owners. We also discussed how the pharmaceutical industry in many ways has determined the direction of our care focusing on the prescription medications some of which have created the present opioid crisis. An example of that we discussed was the treatment of chronic pain with opioids. An alternative to that is the treatment of chronic pain with nonpharmaceutical interventions such as cognitive behavioral therapy and acupuncture.
The question that remained was what can you do? As I said in the first post: a lot. Here’s a list of some things to think about that relate to the resilience skills that we have focused on in this blog.
Number one: Demand that your healthcare provider connects with you and communicates with you.
My late mother was better at this than anyone I’ve ever known. In her late 80s when the physician would talk to me or someone else who had brought her to the appointment she would immediately redirect him and remind him that she was the patient and he should be directing his questions and comments to her. If he attempted to leave the room and hand her a prescription and she wasn’t finished, she would tell him to sit down and listen because she still had questions that he had not answered. Most of the providers that dealt with my mom soon learned that the best policy was to sit down listen and respond. Remember that you are the consumer of this person’s services. You are paying them for their consultation and advice. In short, they are working for you.
Number two: Demand flexibility on the part of your providers and be flexible yourself. They should shape what they are doing with you to meet your needs, not theirs. And you need to be flexible in dealing with them. If you are not receiving what you need from a provider, talk with them. If that doesn’t work, find another provider.
Number three: Healthcare should be a partnership. You and your provider both have responsibilities in that partnership. Collaboration is important. You both are equals, but perhaps you are more equal since you are paying the bill. In some countries such as Great Britain, they are training providers to collaborate with their patients. That is something we should be doing more of in this country.
Number four: Advocate for alternative ways of obtaining medications in your state. Your state government can pass laws and regulations that allow the importation of cheaper medications. Unfortunately, the cost of pharmaceuticals can sometimes place people in a situation where they have to make a choice between paying for the medication or paying their rent. The state of Maine is considering such alternatives right now. If the federal government would use its ability to bargain with pharmaceutical companies in this country the cost of prescription medications could be the same as it is in Canada. The health service there, which is a one-payer plan, uses its numbers to obtain more favorable treatment from the pharmaceutical companies. We could use the millions covered under Medicare to do the same in this country. Ask your representatives and senators why this doesn’t happen.
Number five: Take care of yourself. Be an equal partner with your healthcare provider. Pay attention. You should be the expert on your health. You probably know more about your body than anyone else does. Medicine has certainly advanced, but don’t expect medicine to save your life. Drugs and surgery can treat many of the problems that we have and some of our parts can be replaced when they wear out. But it is far better for everyone if we prevent the healthcare problem rather than treat it. Care for yourself.
This article was originally posted toPsychology Today, “In the Face of Adversity“, by Dr. Ron Breazeale, Ph.D. With his permission, we will share a series of posts on Chronic Pain and related issues as a prologue to introducing what Maine has to offer for treatment options.